Hello Koan, Gracenote and Sushi,
I quote Sushi whose post was last:Originally Posted by Sushi
Precisely, what you and Gracenote said, and also in case somebody needs help with doctors etc.
I can't say what difference it will make in practice for particular people, but I myself have been considerably helped by the mere fact that I do maintain a large site myself, that's also well-read for reasons having nothing to do with ME - maartensz.org - on which I can nail persons publicly, if I feel thus inclined, in my own prose. It has helped me a lot, and a doctor or bureaucrat who knows that he can be named and shamed treats me more carefully than were I without that means, which is the main reason that it and I still exist.