Feb 10, 2012
ME: Heidi Bauer vs the Whittemores + Dr. Lombardi PI at WPI
I hope some of my readers liked or were puzzled enough by the previous Nederlog to dive a little deeper into the logic and mathematics of representing.
Now I turn for a brief while to consider the standing and adventures of Harvey and Annette Whittemore that I discussed before here:
1. Heidi Bauer vs the Whittemores
I received the following quotations from CFSChronicles, that I don't know well, by one Heidi Bauer, about whom I know little, but who seems to be a patient advocate who has supported the Whittemore Peterson Institute for quite a while, but now got disappointed and angry.
Here are some selections and remarks. The selections are indented. My remarks unindented.
Well... I don't know. My own problems here are that (1) I don't know the US or Nevada and (2) I don't know how to weigh this sort of information. Also, while I have no reason to put my trust in Harvey, this association may not be his fault. Besides, in Amsterdam and Holland lots of apparently very decent, quite rich, ostensibly well-behaved and kind people, especially in housing and law and politics, are somehow involved with the mafia, without anyone being able or daring enough to say precisely how.
The same applies to many Dutch lawyers, especially the well paid and well known ones, and applies to such an extent that a currently popular Dutch term for "lawyer" is "mafia mate": Many are, and owe their income, and quite possibly a lot more, to this kind of entrepreneurs.
Now for some summarizing by Ms Bauer:
I have no TV since 1970, but I do recall Dallas, which was a black and white US TV series about a rich oil magnate and his family. This is better than Dallas, with Harvey as JR (the bad guy in "Dallas") while the sums of money that are involved are also quite a lot larger. Then again, it may well be true, and the Whittemores may have found themselves involved with a Genuine Godfather and his family, with a Sicilian background, name ("Cino, capiche?") and policies. If that is remotely as it is in Holland, which seems likely, the Whittemores are in bad problems, for the mafia is usually beyond the reach of the law.
It doesn't work that way in business, and Harvey may have been forced to, somehow. Besides, one doesn't get rich by being nice, or by pondering more about integrity than about profitability. I agree good business covers not dealing with the mafia, but then one may not know one is, or may have been forced into it.
In Holland and Amsterdam a large but unknown part of the property market - housing, offices - is mafia-related, for it's a way of laundering large sums of money into legality. If one is dealing seriously in property in Amsterdam, one is dealing, directly or indirectly, with people who are dealing with the mafia, though many - most - of the relevant facts are not public information. Of course, one may decide to restrict one's business to speculating in Communion Wafers, but even Our Holy Mother Church is not free from pretty nasty and probably quite correct aspersions, while even Communion Wafers may be used in unsavory ways as well, or be sold by or to persons having ties with the mafia.
Bullshit: It's a fallacy, guilt by association. Also, I am personally not so much concerned how they get money to invest in research into the disease that I have, nor concerned about their motives, if the research looks sound from a scientific point of view. And one just cannot know most or all about the persons one deals with, in virtually any case.
Yes, the last at least looks likely to me: Unless Lipkin's study supports the Lombardi-paper, if perhaps only indirectly, neither the WPI nor Judy Mikovits have much of a chance carrying on in ME/CFS-land.
Apart from that, it seems to me that Ms Bauer is indulging in wishful thinking, but I can understand why she would feel let down or angry, though I find it a bit odd that she - and quite a few other patients also, it seems - want to withdraw consent from being involved in studies of the WPI: Clearly, patients need scientific research to be done, and scientific researchers need patients for data to research. Also, both may benefit, even if those who supply the money for the research and the researchers may be tainted or questionable.
In any case, here is some related news about the WPI:
2. Dr Lombardi PI at WPI
My source is Jon Cohen in Science, who has this brief update
The news consists of two points and some comments by Cohen that I skip:
I suppose that is good news for the Whittemores, the WPI and dr. Lombardi, who was the main author of the 2009 paper in Science that is now withdrawn.
Also, there is this about dr. Lombardi:
This - genetic susceptibility to the disease and dysregulation of the immune system - does seem to me an interesting topic that deserves research, and I also suppose that the rest is more or less what one could expect in the circumstances.
As to ME/CFS (that I prefer to call ME):
Short descriptions of the above:
1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
7. A space- and computer-scientist takes a look at psychology.
See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.
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