Recent - 2003-2005 - medical information about ME/CFS
September 10, 2016: What follows is from 2005. It will have to be updated, but this will happen later.
I am in the 27th year of having ME/CFS and I am a firm
believer in science, rational thinking, mathematics and logic, and
indeed spent a lot of time on these subjects. Also, I have an M.A. in
Unfortunately for me and everyone else who really has M.E.
much of the medical, psychiatric and psychological reasoning and
publications about ME/CFS these 25 years has been not very scientific
nor very rational.
Fortunately for me and everyone else who really has M.E.
there are good medical doctors, and now and then there are scientific
publications about M.E. which are sensible.
Here is a recent - 2003 - publication with a few comments
Encephalomyelitis/Chronic Fatigue Syndrome:
Clinical Working Case Definition, Diagnostic and
This is a pdf file of 222 Kb (so you need Adobe Acrobat to
read it, which you can get for free on many places on the net if you
don't have it). Also, it is partial: This was sent to me from England,
with the notification that it is a publication from the Journal of
Chronic Fatigue Syndrome, vol 11(1), 2003, and that those who want more
than the 30 pages of the publication in this pdf-file have to pay money
to the Haworth Press.
O well - my income in Holland is ... 400 Euro 13 cents a
month, and I don't see how I could afford to pay this. But no doubt
there are many medically qualified persons who have earned a lot of
money doing or pretending to do something about M.E. who earn my total
monthly income in one or two hours, and I suppose they can pay and
subtract it from their taxes.
Apart from this and the fact this free handout stops at page
30 when the treatment protocol starts it is a good medical report.
What this report does not offer is a scientific
explanation for ME/CFS: It describes the symptoms of M.E. and it
counsels medical people how to treat patients with ME/CFS in a sensible
humane and scientific manner.
The next item does offer a scientific explanation for ME/CFS:
B. Novel Chronic
Fatigue Syndrome (CFS) Theory Finally Produces Detailed
Explanations for Many CFS Observations
This is indeed a new theory on ME/CFS by dr. Martin Pall,
who is Professor of Biochemistry and Basic Medical Sciences at
Washington State University.
This comes from ImmuneSupport.com, which is a privately
owned American firm that sells orthomolecular medicine. It caters
especially to people with ME/CFS and has useful regular information for
patients with ME/CFS.
I do not know whether the theory is true and since it is
very new it will need testing, discussion and experimenting, but it is
good sensible science of the type I like, since I have been convinced
for 20 years that the best hope for patients with ME is a good
biochemical theory that accounts for the symptoms.
The third and last item is a link to the site of the CFSCentrumAmsterdam,
namely to a file about their approach to trying to help patients with
ME/CFS, which is a substance called l-carnitine:
information about carnitine
In August 2005 I was accepted as a patient at the CFSCentrumAmsterdam, and
I have been taking carnitine ever since - i.e. some 3 months. It may
help some, and it has not had any bad effects, both as far as I can
see, and for the time being.
The reason to report it is that this is about the only
presently credible medical therapy for ME/CFS. It also is experimental,
and there are no guarantees of anything.