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ME - Resources     

                    

 last edited: 29-Oct-2011

 

 Version 1.1

 

 

 


 

"The greatness of man      
consists in saying what is true,    
and in acting according to Nature."
   (
Heraclitus
)     

   "If we believe absurdities,         
     we shall commit atrocities."    
                                         Voltaire 

This the beginning of ME - Resources on my site.


ME - Resources
What follows is the commented list:
ME-Resources
links to the same list
minus comments


 


PHILOSOPHY
(Godess of): But what's your job? There's no harm in asking that.
LUCIAN: I'm an anti-cheatist, an anti-quackist, an anti-liarist, and an anti-inflated-egoist. I'm anti all the revolting types like that - and there are plenty of them, as you know.
PHILOSOPHY [smiling]: Well, well! You're quite an anti-body, aren't you?
LUCIAN: I certainly am. You can see why I've got myself aso much disliked, and why I'm in such a dangerous situation. Not that I'm not an expert pro-body too. I'm a pro-truthist, a pro-beautician, a pro-sinceritist, and a pro-everything that's pro-worthy. But I don't find much scope for exercisting my talents in that direction, whereas thousands of people are always queuing up for the anti-treatment. In fact I'm so out of practice as a probody, that I dare say I have lost the knack of it by now - but I'm a real expert at the other part of my profession.
PHILOSOPHY [seriously]: That's bad. They're opposite sides of a coin, as it were. So don't specialize in one at the expense of the other. They should merely be different aspects of the same fundamental attitude.
LUCIAN: Well, you know best, Philosophy. But I'm so constituted that I can't help hating bad types and liking good ones.
   (From: Fishing for phonies, Turner translation, Penguin Classics, p. 177-8)


($) Some of my comments are decidedly satirical and sarcastic, and not in the spirit of rational
science, and also not as certain trolls or idiots on the Phoenix Forums think one should 'respectfully'
express oneself. You can skip ALL my comments by going directly to ME - Resource - commentless.

And speaking for myself, I am personally involved in this fight around my pain, my discrimination, my
broken human rights, and don't suffer fools gladly, especially not lying fools as administrate on the
Phoenix Forums, whereas the persons who these trolling fools, on purpose or willy-nilly, from cowardice,
stupidity and justified lack of self-respect are helping
, viz. the Wesselys, Whites, Bleijenberg etc. are
the dirtiest sleaziest most immoral players I know of in psychiatry and in psychology, which I studied
and have an M.Sc. in. (*)


In the following tables, the authors and titles with links are set apart on one line, with some explanatory comments by me under it. The links are either PDF or HTML-files.

BASICS

   Some basics relating to ME/CS.
 
Komaroff Ten discoveries about the biology of CFS


   This is a brief PDF-file by a professor in medicine of Harvard that gives ten bio-chemical
    findings about ME/CFS: ME/CFS is not a mental disease or psychiatric condition
 

Ben World Health Organization's placing of ME and CFS


A fairly brief description how the World Health Organization has classified ME and CFS. This is of considerable importance for patients and doctors, since psychiatrists and psyhotherapists (not real scientists) since decades choose to wipe their asses with the classification of the WHO, and instead propose their own pseudo-scientific criterions and socalled "evidence based science" (what results if you lie with statistics and criminally incompetent or insane methodology).

Also, the American Psychiatric Association seems to be trying to reclassify ALL diseases so as to have a psychological dimension, that is lorded over by psychiatrists, in the interests of incomes for psychiatrists, and a somatical dimension, that only will enter  the end of curing the patient (if not rich) after psychiatrists have agreed the patient is ill.

This seems to be planned to effective from 2013.

 

Carruthers et al Canadian Criterions (for medical folks)


     The Canada Criterions (as they are mostly known) for diagnosing ME from 2003,
      prepared by 14 medical specialists for the Canadian government. Note this is
      written mostly - unavoidably for such a report - in medicalese.

     These are the criterions for diagnosing someone as having ME that are taken most
      seriously by real patients with ME and real scientists researching ME. The alternatives
      are either less precise and useful (Fukuda Criterions) or consist almost whole of
      intentionally obscure psyhiatrists waffle (Oxford), that aims underhandedly to
      stigmatize patients with ME as insane if not malingerers, for which reasons patients
      with ME are excluded from all help, which saves the state and the health insurance
      companies enormous amounts of money.

Updated version of July 2011: The International Consensus Criterions

Carruthers et al Canadian Criterions Overview (for all folks)


     The same as the above, written by two members of the team, but a lot clearer for
      non-medical folks.

      This is probably the best exposition of what is scientifically known about ME/CFS
      in one file.

Updated version of July 2011: The International Consensus Criterions

ME Consensus Doument


    The same as the above medicale version, but as published in the Journal of Chronic
     Fatigue Syndrome, with a few additions (that seem not important)
 

Hyde Little Red Book: A new and simple definition of ME (2006)

   
     This is by a medical doctor who treated very many patients with ME/CFS and who
     goes his own way.
 

Hooper

Magical Medicine (2010)

    
     This is by professor emeritus Malcolm Hooper, who taught medical chemistry and is a
      very fine overview of what was know scientifically and claimed and done non-
      scientifically as regards ME/CFS in Great-Brittain.

      This is another Must Read for anybody interested in the facts about and around ME,
      written up by someone with a great amount of relevant scientific knowledge

    

Hooper Engaging with ME: Lectureslides Sparsholt (extensive, clear) (2005)


      Nominally, these are the slides for a lecture by professor Malcolm Hooper in 2005, but
       they provide a VERY clear overview of ME if you know a little about it, and also
       provides many excellent or interesting references, links and illustrations.

     

Twisk et al

Plausible explanations for neurocognitive deficits in ME/CFS (etc.) (2010)


      This is the text of a Letter to the Editor of Psychological Medicine. It is brief but
        adequate.
 

Myhill

CFS-Book: Diagnosing and Treating CFS (27th ed, 2009)

      
      This is the 27th edition of medical doctor Sarah Myhill's CFS-Book, that is quite long
       but is very probable quite useful for anyone with ME or caring for (or about) someone
       with ME.

       Dr. Myhill has treated thousands of patiens with ME since 1982, and with considerable
       success also, while she has the merit - for me - that she conceived of a bio-chemical
       theory to account for the known facts of ME that is very similar to my own, that I
       reached completely independently in 1987 (two years before knowing that ME/CFS
       existed), and that others also have come to, that is best classified briefly as the
       mitochondrial hypothesis or theory, to the effect that the energy-pathway by which
       the mitochondriae produce energy (ATP-ADP-AMP and back) is broken in persons
       with ME.

       Again, this is a Must Read for anybody interested in the facts about and around ME,
       also because it contains very many useful tips.

      

Stein Guidelines for psychiatrists

     
      Professor Wessely and his gang, like professors Reeves and Bleijenberg in resp. the US
       and the Netherlands, have since over two decades insisted on totally ludicrous grounds
       that persons with ME are not ill, but are insane or malingerers, albeit it they often,
       though certainly now always, use more hypocritical terminology.

       Psychiatry, since its inception by the cocaine-addict and un-uncloseted lover of
       of prof. Wilhelm Fliess (also obsessed with noses and cocaine), has never been anything
       like a real science, but consists instead for the most part of tales, that for the most
       part are meant to help psychiatrists to get status and lots of money for selling
       psychobabble to the naive, the stupid, the ignorant and the easily impressed.

       Not all psychiatrists are mad, and not all psychiatrists are bad, and dr. Eleanor Stein
       wrote a good set of guidelines concerning how a sane and moral psychiatrist should
       treat his or her patients with ME.      

     

Unknown Fatigue Chronique (French)


      Professor Wessely, mentioned before, the mad Fraudian still teaching waffle at KCL,
       very often lies, and does so very plausibly and credibly, if one is not as informed as
       he is. One of the lies he spouted effortlessly - see: ME: Back to the Middle Ages
         with professor Simon Wessely - P.S. -
is that (I quote the KCL-liar and KCL-sadist
       literally:

                'Each country has different syndromes. They don't have CFS in France'

       The above file, in fine French, was located by me with 6 minutes of reading this
       first, and also has the merits of being a good exposition of what ME is, besides
       refuting other lies of Wessely in the linked interview.

       The reason to list it hear is to illustrate my theses that professor Simon Wessely
       is both a pathological quite possibly psychopathic liar (and apparently, like many of
       that ilk, quite charming, superficially) and an evident medical sadist.
 

PAIN


       Pain is one of the main symptoms for most persons with ME, again one of the many
       facts prof. Wessely usually conveniently forgets, denies, or pooh-poohs.
 

McCleary et al

Pain Practioner (2010)


       This is by the director of the CAA for the American Association of Pain Management.
       It is useful if not deep (and a big download for a few pages) and is here because
       it is so far the only halfway decent file I could find on the topic of managing pain
       from ME, which I have a lot of, since decades also. 

 

H. JOHNSON

     
      Hillary Johnson is an investigative journalist who got ME and then decided to investigate
       why so little is effectively done in the USA to help people with ME. This she did very
       thoroughly and managed to write up and get published as a book, called "The Osler"
       (after a 19th C brilliant English medical doctor).

       The summary of the book is: There has been an enormous amount of corruption,
       fraudulence, incompetence and intentional deception in the US, especially on the part
       of the CDC, and the reasons why, apart from the theft of millions, personal vanity,
       evident sadism and lust for power and a well paid easy7 job for the main perpetrators
       at the CDC are still unclear (and may be tied up with state politicking and health
       insurance intrigueing).

       The book is fine and fat and thorough, and since it was published also in the US
       and Johnson is American, one may safely infer that Johnson's facts - that might
       easily be dismissed but for the fact she named names, quoted documents, gives
       dates etc. etc. - will stand up in a US court, and hence are probably most or all
       quite as she wrote.

       It cannot be quoted here (except for some parts) because Johnson retains the
       copyright and mostly forbids that, quite justifiedly also, because she is ill with
       ME, needs an income, and wrote and researched the book.
 

Neal Karlen interview


Continueing the previous note: What I did find was a good and not long interview with Hillary Johnson, which I included because I believe nearly all really good things in the human world are done by original courageous individuals who refuse to conform  to accepted prejudices and refuse to collaborate with corrupt holders of power for the benefits of payment and protection by the powerful.

Hillary Johnson is a very brave woman, and knowingly took the risk of having her  life and health destroyed on purpose by many of the corrupt medical bureaucrats whose doings and crimes she unearthed.

DSM-5


The DSM-5 is the fifth in a series of Diagnostic Statistical Manuals compiled by
the American Psychiatric Association of so as to arrive at sets of symptoms to
diagnose persons with some form of psychological distress or problem in an
evidence based agreed upon science based manner.

This is a respectable end but lately, at least since the DSM-IV, this Manual
is being turned into an instrument to serve the interests of psychiatrists,
politicians and health-insurors by redefining symptoms, description and terms
in ways that best serve these interests while seeming to be scientific.

This is most pronounced in the proposals for the DSM-5, that is intended to be
in force from 2012 onwards, and that seems to seek to add a psychological
component to many somatic diseases and to insist on treating these first,
together with, or only as therapies for many diseases, and to seek to
reclassify diseases with an unknown etiology or cause as primarily or only
as caused by psychiatric symptoms ("dysfunctional beliefs", "neurasthenia)
to be exclusively or predominantly treated by psychotherapy and/or forced |
'healthy exercise'.

The last is in particular so for ME, CFS, Fybromyalgia and similar diseases,
that the World Health Organisation, which is a body of medical doctors of
all kinds, rather than an interest group of psychiatrists, classifies and has
classified as somatic diseases, of a neurological kind, expressly without
psychitatric diagnosis.

For this reason, combined with the fact that in many states psychiatrists
tend to have a stronger influence on political decision making than other
groups of medical men, the contents of the DSM-5 to be, are of rather
great importance, since they run the risk to be 'scientifically' diagnosed
in terms that amount in non-medicalese non-euphemistic terms to
'malinger or insane', and not to be tested for somatic symptoms,
not to be entitled to help and support somatically ill persons get,
and to be forced to Cognitive Behavourial Therapy to cure them from
the delusion that they are somatically ill and forcing them to forced
labour in the form of Gradual Exercise Therapy to teach them correct
discipline and work modes.

CFSIDSAA Statement to DSM-5 Taskforce


This is the proposal of the CFSIDSAA to the DSM-5 Taskforce.
(CFIDSSAA = The CFIDS Association of America.
  CFIDS = Chronic Fatigue and Immune Deficiency Syndrome.)

MITOCHONDRIA


Mitochondria are tiny parts of human cells in which the energy is generated the cell can use, by the use of some pretty amazing and beautiful bio-chemistry, in which ATP is broken down to ADP which is broken down to AMP, releasing energy, and then rebuilt to ATP.

See below for more: This is a very interesting subject for anyone who wishes to know how one does manage to do anything with one's body and whence one does get the energy to do it.

Bassett Mitochondria: An Overview


This is a clear overview of the science involved in the subject,
written for intelligent laymen with some basic knowledge of science.

Vancouver Hospital Understanding Mitochondrial Disorders


This is a clear overview of the subject in not so many pages for laymen.
It is a bit simpler and less detailed than the previous item.

Parik et al Myths and facts about mitochondrial diseases


This is a short and clear summing up of what its title says. Like the previous
two items it is helpful for patients who are not medically trained or specially
knowledgeable

Myhill et al Chronic fatigue syndrome and mitochondrial dysfunction


This is a VERY interesting paper that originally appeared in the Int J Clin Exp Med
(as they themselves abbreviate it) in 2009 for at least two reasons, for me:

First, it outlines almost exactly the theory I myself found in 1987, before knowing
about ME, then being ill since 1.1.1979 and having rather extensive statistics on
my own experiences with various supplements, after diving into some medical and
biochemical textbooks. I wrote this theory out in Dutch and have given it to
several medical doctors none of whom did anything with it (and the average G.P.
or "medical specialist" an average patients gets to see is not a research scientist
at all nor trained as one, but is trained as a practitioner of medicine rather than
anything else).

Second, it is an eminently sensible theory, that should get the research funding
to get it properly tested, investigated, tweaked and, if it stands up, used on a
wide scale.

This is highly recommended and fairly readable also for laymen. If you want to
see - as I was pleased to discover myself - what line of thought I followed in
1987 you should look at figure 1:

I copied this because this is just the line of reasoning and indeed manner of illustrations I followed in 1987. It is explained in - various degrees of - detail in handbooks of biochemistry or musdcle physiology, and is in itself a rather amazing and beautiful bit of biochemistry.

And incidentally, the Mitochondrial Hypothesis for ME/CFS is co-tenable with the XMRV Hypothesis for the same, for a reason based set out by an analogy: If one can manage to tweak the water or gas supplies to a house in which people live who cannot leave it (as patients live in their bodies), then you can be sure of upsetting a great manner of routines in the house that depend, directly or indirectly, on ordinary supplies of water or gas.

Also incidentally: I do not know which hypothesis is correct if any or both, and so far no one knows, but two advantages I personally see with the mitochondrial hypothesis is that I don't feel really optimistic about harbouring a retrovirus, if I do, and that, as I said, I dreamt up this theory myself, on the basis of rather good statistics of my situation and experiences and experiments with supplements from 1985-1988. (But this is a matter of personal feeling, and facts are facts whatever one's feelings about them.)

Bell ME/CFS as a Mitochondrial Disease


This is a short and quite clear exposion of doctor David Bell, who treated a large
number of patients with ME of the mitochondrial hypothesis for ME/CFS.

SCIENCE OF ME


This section contains scientific discussions and matters relevant to the
scientific study of ME.

Since there are at present in broad terms two kinds of science involved
in that study, namely pseudo science (of the CDC, of KCL, of the
University of Nijmegen i.a.), generally of a (pseudo-)psychiatric kind,
and real science, there are sections for both.

It is to be noted that especially in this section and its subsections
there is FAR more material on the internet than is present here.

Maartensz Scientific Realism versus Postmodernism


This is a short and clear exposition that should be accessible to anyone
intelligent enough to be able to study a real science.

By way of introduction:

It is highly probable, given my obvious great intelligence and learning and most
excellent degrees, that if I had been healthy or indeed if I would have had some
help with my medically agreed upon real, debilitating and painful invalidity, I had
been an academic employed in research and teaching of philosophy of science,
methodologogy and/or mathematical logic.

As outlined in the above SCIENCE OF ME this is of considerable important
in that ME-patients lifes are being destroyed and ruined on the basis of
truly sickeningly stupid pseudo-science the creation and reception of which
I can only explain by sadism and/or utter corruption on the part of those
who generated this irrational trash and by utter indifference of the majority
of medical doctors to the suffering of patients with ME/CFS.

Human degenerates like Wessely, White, Bleijenberg and Van der Meer, the
modern doctors MEngele of ME, should have been kicked out of science and
their professional associations since decades for being grossly intellectually
incompetent besides being morally sick and lowering the reputations of
medical doctors, psychiatrists and psychotherapists to the level of sick
sadistic servants of their own perversions and of politicians and health-
insurors.

And indeed the enduring strength and power of degenerates - check the link! -
like
Wessely, White, Bleijenberg and Van der Meer, who propound fallacies in
the name of sciene to please their own perversions and to suck up to
politicians and health insurors
, is that so very few people have real knowledge
of real science and real knowledge of its logical, philosophical and methodological
basis.

I do, and the link is a translation of a Dutch piece I wrote several years ago,
that quite clearly outlines a 9-fold contrast of oppositions between real science
and pseudo science, also in terms any intelligent reader can grasp.

Incidentally, the reader should realize that, especially since the rise of post-
modernism (that since its rise has not disappeared, since its acolytes are
professors in soft "sciences" allover the world) and since the radical decline
in standards of admission and teaching in all but the very best universities
in the West, numerically and proportional there are at present far more
pseudo scientists than real scientists, and this will remain so the coming
generation at least, apart from a worldwide revolution or the disappearance
or collapse of human civilization, for a reason the physicist Max Planck already
noticed, next to the ordinary facts about power, groupthinking and the
average human profligacy, also prominent amongst academics, and especially
academics in pseudo-sciences:

"A new scientific truth does not triumph by convincing its opponents
and making them see the light, but rather because its opponents
eventually die, and a new generation grows up that is familiar with it."

Sad but realistic.

Maartensz Philosophical Foundations of Rational Science


This I published in 2009 on my site with the title "Ten good modern philosophy texts" but since all of them are about the present title I chose that one for this occasion.

Note that it concerns basically a pile of books that, when put on top of each other may be as tall as I am (1.95 m), whence it may be inferred with utter certainty that it is a LOT of reading.

But it is - or would be - very interesting reading, that is quite relevant to the real understanding of real science, and indeed I doubt that anybody does have a real understanding of real science that does not have most of the scientific, logical and mathematical knowledge outline in items 9 and 10 of my text.

Incidentally, in case you asked 'But how come there are real good physicists who are real good physicists without having bothered to read those texts?' my answer is that a real good physicist imbibed most of that knowledge while learning physics (at a real good university), for I am not talking of pseudo-scientific posturing but about the real intellectual, mathematical and logical foundations of ALL real science. (Indeed, you can pick up most of it in Richard Feynman's "Lectures on Physics", if you are interested in physics and intelligent enough).

Updated version from January 2011 for rational background

Unknown

List of Chronic Fatigue Syndrome (CFS) resources for doctors


This is a quite short (11 Kb) but quite useful list of books, papers and internet
material about which the unknown write starts with writing:

List of Chronic Fatigue Syndrome (CFS) resources for doctors

Suggested use. All but one of the following resources are free.
I suggest doctors acquire  and review all of them.

De Meirleir et al Unraveling the origins of Myalgic Encephalomyelitis


This consists of the slides of a talk professor De Meirleir - one of the co-authors of
the Canada Criterions, for which see above - gave in May 2009. Its subtitle is:
"Gastrointestinal dysfunction, Production of Neurotoxins and Environmental Exposure".

It is quite instructive, especially if you have been dipping in some of the literature
mentioned in this file, and professor De Meirleir has a great and deserved reputation
among persons with ME for helping them and writing very sensible science about
ME/CFS: He is a real scientist and real medical doctor who does and thinks like
a real scientist and real medical doctor should.

               PSEUDO


Pseudo science is the science of deception by abusing science for ends it is not designed for. Believers in pseudo science generally believe it is real science, usually for lack of scientific knowledge or strong personal, political or religious interests or prejudices.

The originators of it come in several flavours, depending on their ends, methods and state of (self)delusion. The Viennese psychiatrist Sigmund Freud, like most or all of his well-known contemporary psychiatric competitors, was for the greatest part a conscious pseudo and fraud; many of his psychiatric followers and of other psychiatric men of ideas and phrases, generally are more deluded and less clever, and indeed may do well (sometimes) for respectable reasons, simply because they mean to be helping people and have found some understanding of them somehow.

Those who want to know more about pseudo sciences as sets of hoaxes, delusions, scams, conmanship and outright insanity are recommended to read Martin  Gardner's "Fads and fallacies in the name of science" and "Science: Good, Bad and  Bogus", both also interesting for anyone interested in science anyway, and very well nwritten and informed.

The pseudo-psychiatry of the schools of Wessely, White, Bleijenberg, Fink and other psychiatric 'specialists on CFS' are conscious bogus scientists, of whom the kindest explanation is that they, at least and in any case, try to serve their  own interests and those of their psychiatrc and psychotherapeutical colleagues.

In fact, this is the case for the vast majority of the schools and therapies 'in the  name of science' psychiatrists and psychotherapists have practised and written books about and did 'evidence based' science in (methodologically rotten usually invalid statistics), for the same reason that the vast majority of the religions must be mistaken since they mutually contradict each other and both as regards  how things are to be explained and how one should act.

For a true and still valid description of psychiatry by the former professor of psychiatry, later professor of neurophysiology and one of the founding fathers of cybernetics and neural networks see McCulloch vs. Wessely and for a true and still valid description see the fundamental description of what pseudoscience is by the worldfamous physicist Richard Feynman see: Feynman vs Wessely.

               REAL


Real science is vastly different from pseudo science in methods, ends, outlook, and assumptions, and is concerned with finding the real truth about real facts, events and processes by means of intersubjective objective methods of experiment and research, logical and mathematical argument, and proper design and methodology.

It is mostly but not solely found in the hard (as opposed to soft) sciences like physics, chemistry, bio-chemistry and applied and pure mathematics. The reasons these sciences are real is mostly because their subject-matters have been shown to be amenable to mathematical methods, concepts and theories, and to be open to repeatable experimental testing, while also being concerned with things that are fairly simple or general, rather than complex and variegated: Each atom of copper has the same properties as any other, apart from location; each human being is uniquely differenf from any other human being and vastly more complicated than an atom.

Real science started with Galileo, who was the first to see and state clearlythat real science must be based on careful experimentally established facts and conceived in logical and mathematical terms, since the Book of Nature,in so far as a man's mind can read and understand it, is written in mathematics or only comprehensible mathematically (as in statisticalmechanics) for a human mind.

The reason why mathematics is so important is that it is the scienceof arbitrary structures and everything is some kind of structure at least, apart from whatever else it may be (such as pleasant to the
eye or taste).

MM
IACFS/ME-Newsletter Question and Answer session with Dr. Mikovits


This is just what it says: an attachment to a IACFS/ME-Newsletter of
April 2010 consisting of the text of a question and answer session with
Dr. Judy Mikovits, who is the leading researcher of XMRV at the
Whittmore Peterson Institute.

It is quite interesting, contains rather a lot of information I was not aware of
before reading it, and will be interesting for anyone desiring to know where
the WPI stands or stood in April 2010.

SITES


This section differs from the others in supplying links to websites concerned with ME that are not on this site.

I will have to update this but for the moment copy my ME - sites file (with one deletion) where you'll find more information about the following sites and/or files:

Most  useful

InvestInMe Fine English site, much info
Phoenix Forums Many patients
Phoenix Rising - Cort Johnson American patient
ME Action UK British patients and activists

Medical Background

Mette Andersen Danish MD and patient
DoctorMyhill.com English MD

Research Background

Malcom Hooper English scientist
InvestInMe Many papers by prof Hooper
InvestInMe: InfoCentreLibrary Fine collection of ME-material
Hillary Johnson American investigative journalist
Whittemore Peters Institute American Research Institute
New York Times article nov 2009 On ME, Whittemore and XMRV

Most of these sites contains a lot of information and very many links to other sites.

XMRV


XMRV is the acronym of a recently discovered retrovirus (HIV is another) for which
there is evidence that it is relevant to ME/CFS and to prostate cancer.

If it were established that XMRV is either the cause, part of the cause, or a fairly
typical passenger persons with ME fall prey to, much light could be thrown on
ME/CFS and there are real possibilities of finding effective medicines fast.

At the time of writing, XMRV is new and contested, and that especially as
it relates to ME/CFS and that in particular by self-styled specialist in CFS,
as they call it, viz. the psychiatrists of the Wessely and Bleijenberg schools,
who have done some of their own pseudo-science to make it more difficult
to find funding for real scientific research into XMRV and ME/CFS and to
blacken the reputation and credit of the original work on XMRV, that was
excellent enough to be published in Science, unlike what the pseudo-
scientists produced, that is refused by reputable journals for real science
but accepted by non-reputable journals without peer review.

The reason the pseudo-science by psychiatrists about a field of real science
they lack all credit for is that psychiatrists are better trained and have far
more time to play the media, while journalists are almost always not capable
of judging scientific quality and mostly driven by the need to score a good
story rather than to serve the cause of truth or of ill persons, who rarely
find access to journalists.

Personally speaking, I decided when I first heard of XMRV not to dive into
the subject, because I do not know much biochemistry and do not have
the health to rapidly read into it. Also, it is not yet certain that XMRV
does cause or contribute to ME/CFS, though it would in principle be
capable of explaining much about ME/CFS whereas it also is in principle
a somewhat pleasant coincidence that medicines and techniques and
knowledge that have been acquired due to the study of and battle against
AIDS may be fast available - if indeed XMRV is causal or contributive to
ME/CFS.

I have selected a few files concerning XMRV that may interest some,
but should warn that full understanding requires, at the very least, a
considerable knowledge of bio-chemistry.

The best reference for those without much relevant background and
with an interest in ME/CFS is on the Phoenix Rising site: ......  
Here there is a lot of material about XMRV, geared to ME/CFS, and
generally well-written and clear (if perhaps a tad or two more
optimistic about XMRV being IT than I am, so far, bun indeed
here there is vast scope for disagreement while both being rational
(as often with personal probabilities for ill-understood eventualities).

Unknown XMRV factsheet


This is just what it says, seems written by a specialist, and is
comprises 3 clear pages and 12 suggested readings.

Ortho-moleculair XMRV: De 'missing link' bij ME/CFS? (Dutch)


This is an interesting article by someone who knows medicine about quite
a few aspects of the XMRV controversy in February 2010. Clear, for laymen,
not long, with pictures of Dr. Judy Mikovits and Prof. Dr. Kenny de Meirleir.

Baraniuk

Xenotropic Murine Leukemia Virus-Related Virus in Chronic Fatigue Syndrome and Prostate Cancer (2010)


This is a short and clear article as stated in its title. It is here because it seems
probable there is a link between XMRV and prostate cancer and my father died
of that.

Hoshino et al

Long-Term Administration of Valacyclovir Reduces the Number of Epstein-Barr Virus (EBV)-Infected B Cells (etc. 2009)


This file fails at the moment to open.

Voisset et al

Human RNA “Rumor” Viruses: the Search for Novel HumanRetroviruses in Chronic Disease (2008)


This file fails at the moment to open.

 


See also: ME -Documentation and ME - Resources - Copyrights


Supplements on ME by me


 

Supplements


The term "supplements" is here not used as in "food-supplements" (for which see Dr. Myhill's files in this section) but additions to the above, mostly written by me and published on my site.

In fact, there is MUCH more about ME on my site but most is in Dutch and much of that is concerned with telling the tale and giving the evidence for my experiences with ME in Amsterdam, which should or could make the outline of a fine novel or film (as indeed also is true of the lifes of quite a few others with decades of ME, which also teaches one a lot about ordinary men  and their ordinary humanity towards their fellow humans).

Since I am the principal author the author name is deleted in what follows, though I should note - and will note in my introductory comments - that not all the text is mine, since I quoted repeatedly and extensively. Also, all that follows is quoted from Nederlog, that is a set of  mostly daily appearing files that concern my own very variegated interests and that have been appearing since 2004 and must be unique in Holland, both as literature and otherwise.

   
  ME: On having severe ME


This is just what it says: A description of what it is like to have severe ME. The description is not by me but by Gerwyn, a very intelligent and learned member of the Phoenix Forums (in 2010), who lived through it and got out of it with the help of Dr. Myhill.

  ME: ME and Human Rights


This is again just what it says: A full listing of the Universal Declaration of Human Rights, both in English and in Dutch, with an indication why they matter and which of these rights have been - knowingly and on purpose - broken in my case with ME in Amsterdam.

  ME: Back to the Middle Ages with professor Simon Wessely


There are, no doubt, especially amongst my "colleagues" who are "practising psychologists"  and such, some persons who consider themselves learned, rational and reasonable, who would like to argue that I am somewhat mistaken in assessing the human-all-too-human weaknesses of professor Simon Wessely, a person I hold to be (and I just happen to be both older and considerably more intelligent and learned than he is) a sadist who also knows he is a sadist, but probably will not admit it until he falls in the hands of a guy like him, when professor Wessely, in his human euivalent Lavrenti Beria's gloating words about his victims

"will recite the Athenasian Creed"

after a few doses of CBT and GET he will then get.

Anyway... all who doubt professor Wessely is a real sadist and also quite mad the last incidentally in a way quite a few psyhiatrists seem to be evidently mad, should read  the above and following piece, and in particular 7: Professor Simon Wessely's  many mental issues for which see below.

ME: Back to the Middle Ages with professor Simon Wessely - P.S.


This continues and extends the previous item, and does so by a logical analysis.

Those who doubt that analysis (i) urgently need their IQs measured, especially if academics and (ii) should consider the following quotation from the proposals for the new DSM-5 to be on politically incorrect disease, as I shall call it, which if the DSM-5 comes to be instituted as the APA wants it will lead to the exclusions of most non-millionaires from real medical science, and the sectioning or medical murder of very many non-millionaires who fell ill and didn't heal within an bureaucratically approved way.

Here is the text for the creation of a diagnosis for Soviet and Nazi Psychiatry, cited after the CFIDSAAs Statement to DSM-5 Taskforce also listed above - and I print it in larger RED letters to assure you may believe you eyes, and in order to add my own comments under it in smaller letters: "

"The CFIDS Association strongly questions the utility of the  proposed rubric of complex somatic symptom disorder (CSSD). According to the DSM-5 website March 28, 2010):

To meet criteria for CSSD, criteria A, B, and C are necessary.

A. Somatic symptoms:

Multiple somatic symptoms that are distressing, or one severe symptom"
  
   
That is in proper English: You are ill and being not a milionaire are dependent on health-insurors or  the state or city's help.

"B. Misattributions, excessive concern or preoccupation with symptoms
  and illness: At least two of the following are required to meet this criterion:
"
    
      Since you are not rich, it is better that no money is spent on you at all, and in fact society or at  least state bureaucrats and health insurors would love to see you die, the sooner the better, for that would save a LOT of money.

      Next to which one finds the meanwhile standardized shit of "criterions" without justification or based on biased so called "evidence based science" by the very group of health professionals who hope to profit from it.
     
      And note please how totally arbitary "misattributions", "excessive" and "preocupation" are:  Who is to judge this by which criterions? Clearly, psychotherapists are going to judge this, by their own mad criterions, that serve the health-insurors.

      Unless you are very rich, in the coming Brave New World designed by the APA you will be mad if you are ill or else a malingerer, and deserve to be sectioned or locked up, of course, as these things go and went in the former Soviet Union, "in your very own Personal Interests AND in The Interests Of Our Civilized Society".

"(1) High level of health-related anxiety."

      In other words, since you are personally too poor to pay a real scientist for real research, you must be MAD to worry about your health if you are ill and in pain: These are dysfunctional illness beliefs that from 2012 on are meant to allow the sectioning of you, or your being convicted to forced labour to punish your impertince of worryintg about your own health without being rich.

"(2) Normal bodily symptoms are viewed as threatening and harmful "

       Clearly, the poor and malingering likes of you when in pain, in fever or when wounded are clearly insane: Only rich men who can foot the bills may consider pain, fever, distress or indeed being wounded as evidence that they are ill - the poor have no right to be ill and certainly have no right to worry about being ill if they feel ill, unless they are professors of psychiatry who can foot bills of real medical scientists.

"(3) A tendency to assume the worst about their health (catastrophizing)."

     Again, you - being poor, like 95% of persons are, in our fine Western Democratic Civilization - have no right to make any assumptions about your own health if you feel ill, are in pain, have a fever, or have been vomiting up everything but your stomach wall: No money, hence no real medical help, hence mentally unfit and ready for sectioning or forced labour camps.

    And note the total arbitrariness of "tendency" and "assume": Who is to judge and by which standards?
  
"(4) Belief in the medical seriousness of their symptoms despite evidence
       to the contrary.
"

     This is Objective Psychiatric Brave New World Science: Your dole manager and your psychiartrist (to whom you are forced to go and whom you are forced to obey if you want to receive dole money to eat) decide, at their personal discretion, whether evidence is to be considered "medically serious", a task they nobly and eagerly will fulfill knowing that "we all have sufficient strength to bear the miseries of others" since we all don't feel them anyway (so there: they can't be real, unless you are rich enough to pay a real medical scientist)

"(5) Health concerns assume a central role in their lives"

   So you are all day forced to be in bed, you are in cconstant pain, doing anything whatsoever causes enormous sweat attacks and more pain, your lymph nodes are swollen, you clearly have rheumatical patches on your hands and fingers, your heartbeat is far too fast, and all of the same holds for your spouse or child, and you do not know how to get money for next month or shoppings for today....you must be not a rich man, and
 therefore clearly you are a neurasthenic compulsive hysteric a,k.a. malingerer, who needs a sharp knock over the rheumatic  knuckles and some months of forced heavy and unpaid labour to teach you the work habits post-2012 politicians, psychiatrists and psychotherapists deem fit and appropriate for the subhuman like of you! 

"C. Chronicity: Although any one symptom may not be continuously
present, the state of being symptomatic is chronic and persistent
(at least six months).
"

I suspect this is thrown in to deal a.s.a.p. starting 2012 with hounding persons with ME/CFS or with FM to their deaths (they not being rich enough to pay for themselves and therefore of positive disvalue and disutility for Our Great Society), but note that here (i) the possibility is smuggled in to wipe a psychiatrist's and bureacrat's ass with "at least 2 of 5 symptoms" and "the state of being symptomatic" is smuggled in for the same purpose: Gobblydegook which means that you complain too much and have a big mouth, according to your kind dole manager and his psychotherapeutical side kick, both of whom also know quite surely, and will tell you if you can get them as angry and out of control as I can, that they'd prefer to see you dead or murdered, simply for not accepting their human intellectual and moral  excellency and refusing to accept their pseudo-scientific sadism.


It's so much nonsense - and very dangerous nonsense, for many reason including this that some may have missed: Pain is a natural signal to avoid doing something, if possible. One may have to try to disregard it having no adequate means to repress or combat it, but one should not try or be forced into doing just what  is bad for one, nor should one be talked or diagnozed or stigmatized into taking such symptoms of illness that one has as less serious than there pain or risk merit.

The above proposed APA ruling on 'Complex Somatic Symptom Disorder' is a morally, medically and legal nonsensical and evil proposal, for it contradicts the first two duties of medical people to help people and not to do harm.

If the APA encorporates this manner of diagnoses in its DSM-5 American psychatrists should be denied the status of scientists and and not permitted to practice medicine for the above is utter nonsense in the end mostly derived from psychiatric monetary interests in clients and the thesis that medical science and medical and in particular psychiatrical doctors are omniscient, which is tribal quackery and witchdoctorship at best.

Studies in MEdical Sadism


The following articles are all by me and were written for Nederlog, which is to say that - among otherthings - they were written fast and on the day they were published.

I am quite serious in what I am saying - indeed, being also 60 it means I will have to start looking for decent means for a decent suicide, in case I were to get too helpless to take care of myself - and indeed it has taken quite a long time until I was finally convinced of what follows, since I come myself from a family that is not gifted in the beastly ways quite a few medical and bureacratical persons are (that very well may be, in view of my own experiences and extensive reading in human history, the  ordinary human case and ordinary norm: only the healthy average from Our Group  is really properly human.

  0: Studies in MEdical Sadism (overview + Kumar & Clark's Clinical Medicine)


This the start of my series "Studies in MEdical Sadism", in which I am quite serious:  I cannot account for the behaviour of the main players of the Wessely-Reeves- Bleijenberg school - as a psychologist and philosopher of 60, with 32 years of  painful experiences with ME in Amsterdam - than as in part inspired by quite  conscious sadism, though more than that is certainly also involved, and the same  applies to many bureaucratic types I have had to meet forced by having ME.

However, the last group is less to blame if human-all-too-human, for they generally only followed orders and were stupid and without any real civilization, while the first group are professors of psychiatry or psychology who must know what they are doing - hurting people who cannot defend themselves well or at all - and who must know that they are lying if not criminally incompetent or both.

This piece deals with a part of Kumar & Clark's medical handbook, and shows that  it is malevolent nonsense, after sketching in some background. (If the rest of "Clinical Medicine" is on a par with the part I treated, much iatrogenic suffering may be expected on the part of credulous medical readers of it.)

  1: "Die Mörder sind unter uns" (the baseness of some medics and politicians)


This connects my own family background and personal history, as outlined in Dutch in  ME in Amsterdam, with the suffering and maltreatment of patients with severe MEin England.

This is something most Dutchmen pretend not to understand, and something that most Englishmen and Americans probably only very partially get, not having parents or grandparents who lived 5 years in a Nazi-occupied country where a considerable part of the population collaborated with the Nazis.

Even so, it is of importance to understand my own orientation and - Americanism - 'where I am coming from'.

  2: "101 Good Reasons" (clarification CBT+GET & 101 reasons by G. Crowhurst)


This consists mostly of a text with 101 good reasons why ME/CFS is a physical not a mental disease, compiled by Greg Crowhurst, whose wife has severe ME, and whose impressive site is here: Stone Bird.

The text starts with an English + Dutch introduction in which I clearly explain what CBT and GET  really are, in practice: Degenerate and inhuman ways of disciplining people, by forced brainwashing and forced labour.

  3: "The evidence & the techniques" (current techniques of MEdical sadism)


This continues, summarizes and extends the foregoing.

  4: Intermezzo - Lucian (a very disrespectful most intelligent satirist)


Two theses

  • There is such a thing is medical sadism in general, that is, medical doctors who are in business because they like to exercise power and like to earn money with pleasure derived from the misfortunes of others or from causing others pain or misery.
  • There is such a thing is medical sadism in the medical/psychiatric treatment of ME in particular, namely in the psychosomatic schools of Wessely, Reeves and Van der Meer (and others).

and some nice quotations from Lucian, a classical satirist.

  5: The amazing & great Kim & Dr. Yes (alas still not well-reformatted yet)


This is - as it says after the link - what remains after the original, that was considerably longer, disappeared. The brief of it is that Dr. Yes has severe ME and is in an asylum in New York where he is maltreated (see also 9 below) and that Kim, a patient with ME, tried to help him at  considerable risk to her own health.

Eventually, this attempt came to nought for various reasons, and Dr. Yes is still in his asylum and was recently again maltreated (see 9 below) - and let the reader please note that my own  conviction that much of the treatment I received with ME (while being civilised, polite, very well  spoken, of strong scientific inclinations, very learned) can only be rationally explained by the hypothesis that those who dole out these treatments to me, usually in the evident firm conviction that whatever happens I cannot hurt them, while they can hurt me all they please, are to a sickeningly large extent moved by personal malice, sadism and ressentiment, dates back to (i) 2002 when the Ombudsman of Amsterdam tried to drive me to suicide and prevented my getting the Ph.D. so as to protect her Labour comrade and personal friend the Amsterdam mayor who rather protects harddrugs dealers than me and (ii) to April and October of 2009 when  I learned the real facts about the psychiatrists Wessely and Bastiaans (the links are to Dutch
articles of those times).

  6: Herr Professor & Frau Doctor Wessely (The Real Truth metavisually)


These are some excellent visual arguments that I owe to some members of the Phoenix  Forums (Roy S and Dreambirdie). While not adding much intellectually, they provide a fitting sauce and background, and indeed the picture of professor Wessely seeking inspiration is worth its price in gold.

  7: Professor Simon Wessely's many mental issues (just so: a real sicko)


I had concluded in October 2009, when finally seriously reading some of the rot of Wessely, White and Bleijenberg, that I could only explain the opinions, values and motives of these gentlemen rationally and properly (that is, without decently looking the other way when someone does something undecent) by the hypothesis that only an insane person or a clever conscious sadist writes as they write and counsels as they counsel writes thus.

And here I should add that I had read Bleijenberg's doctoral thesis when it first was published, and was so sickened by the stupidity, idiocy and immorality of that, not to speak of its awful style and extra-ordinarily stupid reasoning, and had concluded I wanted to read no more of the standard medical literature about ME, and indeed since then spend almost 2 decades mostly concerned with other things than ME, although I had it all the time and it severely curtailed my possibilities and my energy, while giving me pain almost
constantly.

The reader who thinks this a little odd should realize that I am a psychologists and have known many would be and real psychologists, incuding many professors of it. The brief summary is that I know only two sets of bigger fools, from personal knowledge: the academically employed philosophers I have met and the politically radicalized student revolutionaries (most of whom were in fact apparatchiks of the Dutch communist  party in the University of Amsterdam out for a career and a professorship in a pseudo-science for life).

And unless the reader has studied psychology with my quality of mind, in a Dutch university during the years I "studied" there, it is probably quite impossible to feel or understand my disgust of and contempt for the common run of psychologists and psychotherapeutical types (though the reader should realize not all psychologists are psychotherapists: only the more stupid more crazy are, on average).

To turn back to professor Wessely and his neuroses, psychoses, insanities and further human-all-too-human qualities: While I had in October 2009 concluded only a malicious madman would and could write as he did and does about persons with ME, I had not at all realized the true sadistic awfulness of the man, that  the reader finds illustrated im the present file.

This also shows some of the members of Phoenix Rising while the going there still was good.

In any case: Rarely or never was an empirical hypothesis about the motives of a person quicker or better confirmed!

  7a: P.S.: Professor Simon Wessely's many mental issues (the logic of it)


This continues the last item by sketching out the logical proof that according to professor Simon Wessely himself:

I am mad IFF professor Simon Wessely is not mad

whence it logically follows that

If I am not mad, then professor Simon Wessely is mad.

And please note: I did not put forward professor Simon Wessely's KCL-teachings(**) that people think themselves sick.

And moreover it logically follows from professor Simon Wessely's KCL-teachings(**) that

X with ME/CFS is mad IFF professor Simon Wessely is not mad

whence it logically follows that

If ANY X with ME/CFS is not mad, then professor Simon Wessely is mad.


Board and Directors of King College, London!

Why do you keep this man as a professor of psychiatry at KCL?

Do you really believe any decent mathematician, logician, philosopher or doctor in real bio-medical medicine accepts the above simple logically valid inferences of your professor of psychiatry etc. Simon Wessely B.Sc. etc.?

Maarten Maartensz
M.Sc. Psy    B.A. Phi

The reader should realize that this really is so, not because I think so, but because professor Simon Wessely, still employed at King's College, London, as if mad psychiatrists deserve protection and podium at that college, teaches and publishes material from which the above logically follows.

  8 : Professor Wessely's crap completely clarified (visually) (DrSpeedy+profSW)


This is another visual argument, provided by DrSpeedy, and English GP with ME (whose existence also proves that if he is not mad - and is not - then professor Wessely is mad, for saying DrSpeedy must be both mad and medically incompetent for thinking he is really ill instead of merely suffering from dysfunctional beliefs. (A Sovietese or Maoistic term, it would seem to me, as is 'politically correct' and the many hypocritical euphemisms PC people love to indulge in like 'respect' 'solidarity' and  |'appropriate' where the naive reader should realize that it is ever and always the Politically Correct willing apparatchik who decides what is 'appropriate', 'respectfully' of course.)

  9: Studies in MEdical Sadism - 9 : Dr. Yes maltreated


I spoke of the plight of Dr. Yes above in nr 5 of these Studies in MEdical Sadism. This is another example. And indeed - in case you might say Dr. Yes is just one anonymous source - I believe him because I have met quite similar medical doctors, but with this difference that I did not depend on them as a patient in their asylum.

  Dutch
   
  ME-disch sadisme op wereldschaal: Zeer verbitterend nieuws


In fact, this was one of the first things I wrote after having come to the conclusion that  I could not explain nominally medical men like Wessely and White without the need of the hypothesis that, like their colleague dr.Mengele, that they were or are medical sadists and are in it, doing what they are doing (for Wessely and White, like Mengele and Reeves, might have been medical doctors and done otherwise: there was noone forcing them), and indeed, as Hillary Johnson wrote in The Why that:

CDC science [and KCL-science and Radboud-science - MM] is not legitimate science.  It is the science of defamation, of marginalization, of disenfranchisement.  It’s Nazi science (..)

And you may not like that term, but I note that my father survived almost four years as a political prisoner in German concentrationcamps, weighing at one point 37 kiloos instead of his normal 85, but that he was far more healthy than I am with ME (I  could not work and raise a family: he could), and that I have literally been gassed in Amsterdam by Dutch drugsmafiosi protected by an Amsterdam mayor who knew my parents superficially and who spoke (and speaks) if he could 24 hours every day on how inspired he feels by The Ideals Of The February Strike of 1941, for reason of which my father and grandfather were arrested in June of 1941, betrayed by collaborating Dutchmen, arrested by collaborated Amsterdam police agents and handed over to the SS, and that my grandfather did not survive the horrors of concentation-camp).

O yes: And I am forbidden to say this on the Phoenix Forums by a Dutch member, an English administrator and the American owner, from which I have concluded that the latter two want to get rid of me by any means, including what I can only see as anti-semitic remarks. (I suspect the gentlemen will act as if offended. Well: I have been called 'a fascist' many times because I opposed post-modernism, but this is the first time I am forbidden to write the truth about Holland on an American forum by persons who effectively no zilch about Holland or my background: Nazi-methods, I say with Hillary, the less excusable because it is based on ignorance and malevolence of persons who should know better and who should behave honorably and honestly. And if you do or allow as the last link illustrates, it is because you have an agenda you do not honorable and honestly acnowledge.)

  ME: Waarom dokter Mengele medicijnen studeerde - 1


This outlines why doctor Mengele studied medicine, after outlining some of my personal background and that of the drugscorrupt Amsterdam mayors who refused to protect and receive me, even after I had been gassed by the drugsdealers thay personally protected (with a legal paper allowing them to deal drugs signed personally by them) - after which they did not do anything for three years, evidently hoping I would die or suicide in that period.

The brief answer to the question is: Sadists are attracted to medicine, just as medicine makes it possible to behave sadistically in a far wider and stronger manner than almost any other job. This does not mean that most medical doctors are sadists, which I also don't think, but it does explain doctor Mengele's and some other doctors' motives quite plausibly.

  ME: Waarom dokter Mengele medicijnen studeerde - 2


More of the foregoing, mostly geared to my own position with ME in Amsterdam. (Most of this is only comprehensible if you know the Amsterdam and Dutch situations quite well, which are pretty... insane, e.g. in respect of drugs, where every years  between 25 and 75 billion (10^9) euros in illegal drugs are turned over, all semi- legally, that is: it is both forbidden and allowed, and hence neither taxed, nor controlled, nor quality-tested, but extremely profitable since four decades.)

  ME: Uitstekende studie over ME en CGT en GET


This gives the link to a recent good study about the dangers of CBT and GET for persons with ME and some more personal comments, including my assurance (some may not like this) that personally I will not be slaughtered peaceably on the bureaucratic insane medical altar of CGT and GET: I rather die than submit to forced labour: I shall not be terrorized, the more so now I know that the Dutch in great number stand by and watch smilingly if they see someone terrorized.

This quite possibly is again human-all-too-human, but then I am not.

  Visual


The two files that follow without comments are visual arguments and are both by me, and indeed almost my first efforts ever in these ways.

  ME: !! Seriour Health GET + CBT Warning !!
  ME: Unsere Doktoren - Ohne Wörter - 2

 



ME - Resources
What follows is the list minus comments:
ME-Resources
links to the same list with the comments


 


 

BASICS
Komaroff Ten discoveries about the biology of CFS
Ben World Health Organization's placing of ME and CFS
Carruthers et al Canadian Criterions (for medical folks - 2003)
Myalgic Encephalomyelitis: International Consensus Criteria (pdf) (2011)
Carruthers et al Canadian Criterions Overview (for all folks)
ME Consensus Doument
Hyde Little Red Book: A new and simple definition of ME (2006)
Hooper

Magical Medicine (2010)

Hooper Engaging with ME: Lectureslides Sparsholt (extensive, clear) (2005)
Twisk et al

Plausible explanations for neurocognitive deficits in ME/CFS (etc.) (2010)

Myhill

CFS-Book: Diagnosing and Treating CFS (27th ed, 2009)

Stein Guidelines for psychiatrists
Unknown Fatigue Chronique (French)

PAIN

McCleary et al

Pain Practioner (2010)

H. JOHNSON

Neal Karlen interview
DSM-5
W.S. McCulloch: The Past of a Delusion
A. Frances: On the DSM-5
CFSIDSAA Statement to DSM-5 Taskforce
MITOCHONDRIA
Bassett Mitochondria: An Overview
Vancouver Hospital Understanding Mitochondrial Disorders
Parik et al Myths and facts about mitochondrial diseases
Myhill et al Chronic fatigue syndrome and mitochondrial dysfunction
Bell ME/CFS as a Mitochondrial Disease
SCIENCE OF ME
Maartensz Scientific Realism versus Postmodernism
Maartensz Philosophical Foundations of Rational Science
Unknown

List of Chronic Fatigue Syndrome (CFS) resources for doctors

De Meirleir et al Unraveling the origins of Myalgic Encephalomyelitis

               PSEUDO

               REAL

MM
IACFS/ME-Newsletter Question and Answer session with Dr. Mikovits
SITES


This section differs from the others in supplying links to websites
concerned with ME that are not on this site.

I will have to update this but for the moment copy my ME - sites file (with one
deletion) where you'll find more information about the following sites and/or files:

Most  useful

InvestInMe Fine English site, much info
Phoenix Forums Many patients
Phoenix Rising - Cort Johnson American patient
ME Action UK British patients and activists

Medical Background

Mette Andersen Danish MD and patient
DoctorMyhill.com English MD

Research Background

Malcom Hooper English scientist
InvestInMe Many papers by prof Hooper
InvestInMe: InfoCentreLibrary Fine collection of ME-material
Hillary Johnson American investigative journalist
Whittemore Peters Institute American Research Institute
New York Times article nov 2009 On ME, Whittemore and XMRV

Most of these sites contains a lot of information and very many links to other sites.

XMRV
Unknown XMRV factsheet
Ortho-moleculair XMRV: De 'missing link' bij ME/CFS? (Dutch)
Baraniuk

Xenotropic Murine Leukemia Virus-Related Virus in Chronic Fatigue Syndrome and Prostate Cancer (2010)

Hoshino et al

Long-Term Administration of Valacyclovir Reduces the Number of Epstein-Barr Virus (EBV)-Infected B Cells (etc. 2009)

Voisset et al

Human RNA “Rumor” Viruses: the Search for Novel HumanRetroviruses in Chronic Disease (2008)


 


Supplements on ME by me


 

Supplements

   
  ME: On having severe ME
  ME: ME and Human Rights
  ME: Back to the Middle Ages with professor Simon Wessely
ME: Back to the Middle Ages with professor Simon Wessely - P.S.

Studies in MEdical Sadism

  0: Studies in MEdical Sadism (overview + Kumar & Clark's Clinical Medicine)
  1: "Die Mörder sind unter uns" (the baseness of some medics and politicians)
  2: "101 Good Reasons" (clarification CBT+GET & 101 reasons by G. Crowhurst)
  3: "The evidence & the techniques" (current techniques of MEdical sadism)
  4: Intermezzo - Lucian (a very disrespectful most intelligent satirist)
  5: The amazing & great Kim & Dr. Yes (alas still not well-reformatted yet)
  6: Herr Professor & Frau Doctor Wessely (The Real Truth metavisually)
  7: Professor Simon Wessely's many mental issues (just so: a real sicko)
  7a: P.S.: Professor Simon Wessely's many mental issues (the logic of it)
  8 : Professor Wessely's crap completely clarified (visually) (DrSpeedy+profSW)
  9: Studies in MEdical Sadism - 9 : Dr. Yes maltreated
   
  Dutch
   
  ME-disch sadisme op wereldschaal: Zeer verbitterend nieuws
  ME: Waarom dokter Mengele medicijnen studeerde - 1
  ME: Waarom dokter Mengele medicijnen studeerde - 2
  ME: Uitstekende studie over ME en CGT en GET
   
  Visual
   
  ME: !! Seriour Health GET + CBT Warning !!
  ME: Unsere Doktoren - Ohne Wörter - 2

(*) Quand on a pris le parti de ne voir que ceux qui sont capables de traiter avec vous aux termes de la morale, de la vertu, de la raison, de la vérité, en ne regardant les conventions, les vanités, les étiquettes, que comme les supports de la société civile; quand, dis-je, on a pris ce parti (et il faut bien le prendre, sous peine d'être sot, faible ou vil), il arrive qu'on vit à peu près solitaire.
   --
Chamfort

P.S. October 12, 2010:

Copied from ME + me: The past year of ME + me - some that I learned on October 12, 2010 (a better formatted and somewhat improved version of what was here since April 2010.

Added this:

For a true and still valid description of psychiatry by the former professor of psychiatry, later professor of neurophysiology and one of the founding fathers of cybernetics and neural networks see McCulloch vs. Wessely and for a true and still valid description see the fundamental description of what pseudoscience is by the worldfamous physicist Richard Feynman see: Feynman vs Wessely.

Added this on July 22, 2011:

The first is a new, improved set of criteria that replaces the Canada Consensus Criteria for ME of 2003.

Added this on October 29, 2011:

Version: 1.2 -  Oct 29, 2011.
 

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