Quite so Cort, though I hope that " After a couple of years" - as you wrote - we also have some more knowledge from real biomedical research outside these forums but then I trust there will be.
As to "the rigor of a scientific study":
Well... being a philosopher of science who did a lot of methodology: I observe that (i) this forum will yield better data than normal medical questionnaires and (ii) probably also more, easier and faster and and (iii) as 't were for the asking, pronto answered also, on statistically useful levels for reasonably fair conclusions and (iv) "the rigor of a scientific study" depends mostly on the data and the statistical software + savvy to use them well.
So I'd say it's an interesting project statistically, as new research-methodology (Live Bio-Medical Research With An Active Patients Group), as new applications of software and in quite a few other respects.
Finally as to software: I EM'd you about the Proposal as regards software: What I have in mind in that EM, certainly on an extended time-basis, may be very helpful too, for quite a few reasons.
Anyway... this all sounds very good indeed, also scientifically speaking, as research, and I'll EM the academic pros I have in mind. They'll certainly be interested - what they can do (being both full time employed at universities) I don't know, but I am hopeful.
Maarten (pretty PEM'd or I'd 've written more)