Hi Teej,

Quote Originally Posted by teejkay View Post
The CAA's CME (Continuing Medical Educational) materials Spark! was written for doctors so they could learn how to diagnose and treat ME/CFS. They got credits for taking the course. Many thousands have taken it.

That's what my old Sig line was referring to.

I really appreciate seeing people here from other countries caring and taking a stand about the harm the CAA is causing ME/CFS patients. I do believe they are affecting us all but I never expected this kind of support.

Here's the old thread where I went through that CME from SPARK! line-by-line in December. Do you remember?

http://www.forums.aboutmecfs.org/sho...-Doctors/page2

It was Stuart who first brought these materials to my attention and I decided back then to take the first link he gave and thoroughly go through it.

Rebecca- I'm still laughing at your "Oh. Mah. God."

I think this is the link to the post you may have meant, and very fine it is (missed that, thanks!):
http://www.forums.aboutmecfs.org/sho...ll=1#post27046

So I see you have been saying this so for well nigh half a year... patiently

As to:

The CAA's CME (Continuing Medical Educational) materials Spark! was written for doctors so they could learn how to diagnose and treat ME/CFS.

It is in the Sparks-section indeed... (which - if I remember Jennie's post) is not reachable now and may be terminated soon (end of this month? forgot: PEM'd). Anyway... were I a psychologist without ME and with little knowledge of it, and had I received this as medical reference... a contemptuous laughter had been evoked, indeed especially because of the White material, that's just BTFL (beyond etc.), intellectually only, disregarding all else.

So that should really go...

As to:

I really appreciate seeing people here from other countries caring and taking a stand about the harm the CAA is causing ME/CFS patients. I do believe they are affecting us all but I never expected this kind of support.

I also seem to remember Jennie objected to this, I mean "harm"(..)"causing". Well... one may cause a lot of harm unknowingly - and 'iatrogenic' is a somewhat relevant term of art here also in re "causing".

But I do believe Phoenix Rsing is one excellent means to bring home to both doctors and to the public what patients with ME really think and feel, and I also do believe at least some people at the CAA are listening, reading and learning.

It is also true that I am rather amazed about what the CAA put on line (and there IS some good stuff too) especially as regards GET and CBT, but having had more than a few whiffs of Academia and medical thinking I can - sort of - understand how this may have been passed automatically, as 'twere. And it is REALLY difficult to understand what it is to have ME, let alone severe ME, if one doesn't have it oneself or has not lived very close to one who has.

Anyway... I do have some hope that, if perhaps at long last, the CAA is - or is RSN - improving their public material considerably, and in fact I am quite serious in suggesting that people like Orla, Tom, you, Kim, Dr. Yes might be asked for serious assistance (who knows, paid ) in contributing to what - intellectually, morally and experientially very well-qualified - patients with ME think should and should not be in CAA-documentation, and perhaps also to write or edit parts of it.

And if e.g. Dr. Yes could play a part here, in view of his fine style of writing, and his extensive experience as a patient, and his extensive knowledge of medicine and related sciences, and also with a view of helping him obtain better living conditions and assistance than he has, I'd be even more hopeful that the CAA is capable of doing good things and getting fine materials to educate American medical doctors about ME.

Best wishes,

Maarten.