Hmm... maybe they don't like real patients copying and commenting on real science? (I'd find that really ridiculous, and against my own open source view of what real science is...)
Anyway: I saved the IACFS.pdf (Ancient Wisdom: "Save Often") so if there is Urgent Need I can put it on my site(s) (cause sitting on this as if it were private property goes against my own open source view of what real science is and ought to be...).
P.S. And the first post of this thread - IslandFinn's, who found it first, as so often - has it all, as far as I can see, if only in the ugly formatting this vBulletin editing horror imposes on one.