Dear Cort,

Quote Originally Posted by Cort View Post
I agree completely. As I noted earlier I was an avid exerciser before I came down with ME/CFS. I enjoyed my body immensely. I engaged in many sports. I had a strong and healthy body. I took care of it well. How it all fell apart is the great mystery of my life.

With regards to my 'endorsement' of the Amygdala retraining program that someone posted earlier, if you take the time to do read my blog on it you'll discover that what it did or does is improve my quality of life. It has in no way been a cure for me; it has not increased my ability to tolerate exercise or my ability to function. What it has done is focused my attention on the effects activity levels, the activities that I do and my reactions to virtually everything in my life, have on my well-being. I appreciate anything that helps with my quality of life.

This is another tricky arena that I've gotten myself into and I've seen several people on the Internet state that I am a Wessley advocate because I've gotten some positive results from this protocol. What's its shown to should me is that my system is kind of on a knife's edge - that its overreacting to everything - that its basically being overloaded by even the most innocuous events. Before I did it this was difficult to tell because my body seemed to be kind of 'locked up'. Once I reduced my activity levels I was able to see for the first time that it was.

It has not been anywhere near a cure for me. I have never stated it was and I would appreciate if when people connect me with that program that they would not represent that that is so. I do not believe there is a mind-body cure for me. I believe my CFS is a physiological problem. I have always felt that way. When I first came down with ME/CFS I saw a physician immediately and continued to see physicians as often as I could (until I ran out of money). This has never been less than a very, very serious problem for me.

With regards to "With regards to my 'endorsement' of the Amygdala retraining program that someone posted earlier":

I take it that I am that someone, and as I indicated that is all wholly up to you and indeed I believe that it helps you (maybe as meditation would or does help me somewhat) - but my point was mostly that I see as little good evidence to make 'physical exercise' 'training', 'programs', or 'therapy' for people with ME as for Amygdala training (and much more evidence than for Amygdala that 'physical exercise' 'training', 'programs', or 'therapy' for people with ME that it is dangerous to engage in, let alone to be offered it as therapy or be forced into it because it is said to be 'therapeutical').

And indeed I have read all of your bio that Kim linked read twice, at least.

As to your saying

This is another tricky arena that I've gotten myself into and I've seen several people on the Internet state that I am a Wessley advocate because I've gotten some positive results from this protocol.

The first is true and the statement you report to the effect that you are a Wessely advocate is ... a demented fallacy, let's say. And some people with ME may be helped by trying to do some exercising, especially if they are that kind of person.

But in my view 'physical exercise therapy' simply is not on for ME and should be explicitly warned about as dangerous for people with ME and at best, in by far the most cases, a waste of time, energy and money that all could have spend much better by a person with ME - with exceptions, for some (happy few), but at their own discretion, and NOT as 'therapy' for ME, but as something they have personally found sometimes helpful.

See: http://www.forums.aboutmecfs.org/sho...ll=1#post70279

As to your:

What's its shown to should me is that my system is kind of on a knife's edge - that its overreacting to everything - that its basically being overloaded by even the most innocuous events.

I am sorry to hear it. I've been there - in my case because of more than four years of forced overload in sleeplessness, forced work and 'stress' - and I have climbed out of that over the course of some years with the help of B-vitamins (orthomolecular), Prozac and sleeping pills. (But we are clearly different and your manifestations of ME differ in several respects from mine.)

And I am glad to read:

I do not believe there is a mind-body cure for me. I believe my CFS is a physiological problem. I have always felt that way.

But I did not really believe otherwise once having read your Phoenix Rising site (i.e. not the forums but your own many fine texts and studies) - which is why your partiality for Amygdala therapy rather amazed me (as I immediately mailed you, as you may remember), but yes, your bio that I had first somewhere in October that Kim linked recently in her thread (and she is completely right, I think, on the subject of exercise for persons with ME, whereas otherwise I lack relevant knowledge) and I read again explains that in principle rather well, what with EST. Powerful stuff, I've read, but it is not my sort of thing, as you probably understood, though I would agree that (i) trying to find rational self-control including spontaneity is helpful and (ii) one has to try something if one is as ill as you and I are and were, and can only go by what one meets and is offered, and by one's own knowledge, interests and ignorance.

Best wishes,

Maarten.