September 10, 2016: This is an attempt to gather a
number of useful and interesting documents relating to ME. Note - remark of September 10, 2016 - all of the following
dates back to Mar 11, 2010. It has to be redone, but this will happen later.
Scientific material about ME
Subjects + summaries
| Ten discoveries
about the biology of CFS (pdf)
This is by prof.
Komaroff (Harvard) and is a brief pdf file that lists ten reasons why
ME is not at all "all in the mind" and ME is a real organic disease
This is a medical report prepared for the Canadian
Government by 14 medical doctors and professors, that is widely
regarded as the best medical summary and the most sensible criterions
to define ME. This is the full version with additional material. On the
net there are various briefer versions. See the next item.
This is a more popular and readable
version of the
last listed Canadian Diagnostic Criteria prepared by two doctors who
wrote the Criteria. It provides the best overview of ME for people who
did not study medicine.
Byron Hyde's Nightingale ME Definition
Dr Hyde treated many patients with
ME and prepared
in 2007 his own definition for the Gibson Enquiry. This is it.
Byron Hyde's Little Red Book
Dr Hyde's 2006 description of what
ME is and isn't.
Myhill's CFS Book
Dr Myhill treated many patients with
ME and has
developed a specific set of tests and treatments. This is her book
| Dr. Myhill's
Dr Myhill has a specific theory
about ME viz. that
it is due to a malfunctioning of the energy-pathway in the
mitochondria, which is a theory I am myself a bit partial to, because I
thought up much the same theory for my complaints in 1987.
Bell's mitochondrial theory
Dr Bell treated many patients with
ME and also
developed a theory about it. The above reference is to a html-file.
There also is a book on paper by him on his theory, for which see his booklist on his site.
Important sites with much material
This is a well-done extensive site
material and many pages (left) and a fine collection of html and pdf
files (right) part of which is linked on the present page.
| Phoenix Rising
|| Phoenix Forums
The left links to a fine site by
Cort Johnson, an
American with ME for some 30 years, which much material and many files.
He also created a forum (right) about ME/CFS which has at present
nearly 1500 members, that must be interesting for anybody with ME or
with an interest in ME.
| David Axford
|| Dr. Ellen
David Axford is an English ex-seaman
with over 30
years and an extensive site, on which there are many papers/pages by
Dr. Ellen Goudsmit, who is a psychologist with over 30 years of ME.
These are the same links as above
and are repeated
here because especially dr. Myhill's book may be helpful - in some
respects - for persons who do not have access to a good medical doctor
who is informed about ME.
| Hillary Johnson
|| The Why
Hillary Johnson is an American
journalist with ME since decades who wrote a fine book about the
oddities surrounding ME in the US in the 1980-ies and 90ies. The book
is called "The Osler" and the left side gives the link to the
site about the book, while the right site gives the text of a lecture
by Hillary Johnson in May 2009 that explains and comments some of
medical, political and institutional mismanagement of ME.
| The Hummingbirds' Foundation for M.E.
|| The medical facts
This is an extensive site hosted in
patients with ME. It is a good systematic overview of the facts about
The controversy around ME
In fact, there are quite a few
controversies around ME, but most of them are connected to if not
caused by the fact that three groups of mostly psychiatrists -
organized around doctor Reeves in the US, doctor Wessely in the UK and
doctor Van der Meer in Holland - have succeeded over the last 20 to 30
years in (1) psychosomatizinig ME: according to them it is a
psychiatric disorder without somatic basis and (2) manipulating the
research funding for ME into the pockets of psychiatrists of their own
kind and not into any scientific biomedical research.
This is odd for various
reasons four of which are that (a) the theory of Wessely and co. is not
properly scientific or rational in any decent sense of the terms
"scientific" and "rational"; that (b) there is a lot of excellent
biomedical evidence that ME is a real organic disease, as indeed it is
according to the World Health Organization (WHO) since 1969; that (c)
although not helping persons with ME, as is the normal course for such
persons in the US, England and Holland, at least, since decades, surely
must be profitable for governments and insurance-companies that want to
save money, even so this practice is neither moral, nor medically
warranted, nor legally correct, and many persons with ME, that is
a real and serious disease according to the WHO and
thousands of medical doctors, are without any real medical or
social help essentially because a handful of psychiatrists have
succeeded in manipulating the health funding and governmental health
policies with regards to ME; whereas (d) there are excellent scientific
arguments to the effect that the psychosomatic psychiatrists of the
Wessely school are mistaken in all their major claims about ME and that
their published so called "scientific research" on the subject of ME is
scientifically worthless and morally despicable.
This section needs more
documentation, but for the moment here are three links
| Malcolm Hooper
This is professor Malcom Hooper's
2010 summary of
the many arguments against the psychosomatic psychiatric school of
Wessely, also with much evidence about the great harm Wessely and his
co-workers have done to ill people.
| Malcolm Hooper
MENTAL HEALTH MOVEMENT:
This is professor
Malcom Hooper's 2003 argument against the psychosomatic psychiatric
school of Wessely, and in defense of many of his patients
| Criona Wilson
Sophia and ME
In 2005 Sophia Mirza died, horribly
after having spend years in bed without help, without being able to
speak or sit up, and after having been sectioned and maltreated
horribly by co-workers and/or followers of professor Wessely. The link
is to the website that her mother Criona Wilson made about her, her
disease, death and maltreatment, and is quite impressive, also because
everything that happened is given in precise detail.
| Eleanor Stein
Guidelines for Psychiatrists (pdf)
Not all men nor all psychiatrists
are evil, bad or
mad, and Eleanor Stein is a psychiatrist who isn't and who wrote a good
set of guidelines how a good psychiatrist should react to persons with
last update: Mar 11 2010