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Nederlog

January 22, 2015
me+ME: Update about supplements and condition
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Introduction

1. Update about supplements and condition

About ME/CFS


Introduction:

This is a Nederlog of January 22, 2015.

This is an update of December 22, and what follows is probably only interesting to people who have M.E. or an interest in orthomolecular medicine (<- Wikipedia, but this is at least a bit biased, in my - psychologist's - opinion, with 30 years of experience in taking supplements).

There will be another Nederlog today, a fairly brief one on the crisis.

1. Update about supplements and condition

I have changed several things, mostly during the course of the last month:


vitamin C: 4 grams:
I don't think 6 grams made a difference compared to 4 grams and I have gone back to 4 grams.
Calcium+vitamin D+vitamin K:
I still take 2 pills a day, which gives a little less than the daily recommended dose, but see the next:
VM-75: 1 pill a day
This gives many supplements, and the vitamins only in fairly strong doses (75 mg for most B-vitamins). I think I am doing better on this than on the Multui Total, that was very weak on
vitamins.
Potassium: 4 pills a day
This gives 800 mg a day (and is 2 pills less).
Metafolin: 2 pills a day
This gives 1600 mcg a day, and is as was.
Vit mB12 infusion: 1 pill a day
This gives 1 mg methylcobalamin a day OR
Vit mB12 5000 mcg: 1/2 pill a day.
The last two are alternated every day.
Vit aB12: 1 pill every other day
This gives 3000 mcg of dibencozide
Vit B6 (as P-5'-P): 1 pill a day
This gives 50 mg of B6, and I started this again because B6
definitely helped me in the past (notably in 1984-1988).



That is it (and NB that "mcg" = "microgram").

The reasons for changing are that 2014 in terms of M.E. (I also have other complaints since 2012 though they are probably M.E.-related) was a good year:

A bit better than the 20 years before it. But I did get problems with getting sufficient sleep again late in December (I did not for the rest of the year, which is one reason 2014 was a bit better) and these persisted in the first week of January, and also left me with more M.E.-pains. This is what moved me to make some changes in the supplements I take.

So far, this works (or appears to): I have slept reasonably well the last week and indeed felt tolerably well. Also, while my eyes still need dripping and still may be painful, I still use only 1 pair of glasses (as I did from 1960-2012) and this works quite well. (From July 2012-November 2014 I used 3 pairs of glasses - 1 for the street, 1 for the computer, 1 for reading - and not because I liked to, but because I had to. It's a considerable relief to be able to do again with just 1 pair.)

Without any big changes, I will go on with the protocol for a month, and then there will be no news on my vitamin-taking until the end of February. If I start sleeping badly again, I probably will try to make some changes, and I may report on them.

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About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

2. Malcolm Hooper THE MENTAL HEALTH MOVEMENT:  
PERSECUTION OF PATIENTS?
3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
9.
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)



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